Sunday, August 26, 2012

Support, Educate, Advocate, Love with Epilepsy Today, Tomorrow and each day after tjhat!

What Is Epilepsy?

Epilepsy comes from a Greek word meaning "to hold or seize," and people who have epilepsy have seizures. You might also hear a seizure called a convulsion, fit, or spell.

Seizures happen when there is unusual electrical activity in the brain. Your brain cells are constantly sending out electrical signals that travel along nerves to the rest of the body.

These signals tell the muscles to move. During a seizure, a person's muscles tighten and relax rapidly or stop moving completely. Seizures come on suddenly, and people who have them cannot control their muscles while they are having a seizure.

If too many brain cells are sending signals at the same time, it causes an overload, and a person may pass out and shake all over. People who have epilepsy may have seizures only once in a while or as frequently as every day.

What's a Seizure?

Most seizures occur without warning, although some people have a funny feeling, an upset stomach, or a weird smell or taste right before a seizure. This is called an aura. Others find that certain things may bring on a seizure, like not getting enough sleep or playing video games.

Even though a seizure may look scary, it's not painful. During a seizure, the person may fall down, shake, stiffen, throw up, drool, urinate (pee), or lose bowel control.

Other seizures are less dramatic. Someone might just stare into space or have jerking movements in one part of the body. When the seizure is over, the person may feel sleepy and won't remember what happened.
Who Has Epilepsy?

About 2 million Americans have epilepsy, including boys and girls and people of all races and ages. Seizures can start at any age, but often they begin before age 15 or after age 65.

Doctors often cannot explain why a person has epilepsy. They do know that epilepsy is not contagious — you can't catch it from somebody. Epilepsy is not passed down through families (inherited) in the same way that blue eyes or brown hair are. But if somebody's mom or dad or brother or sister has epilepsy, then he or she has a slightly higher risk for epilepsy than somebody whose family has no history of seizures.
How Can Doctors Help?

If a person has a seizure, doctors may do some tests, such as a CAT scan, an MRI, or an electroencephalogram (EEG). A CAT scan or MRI helps a doctor look at the brain and an EEG records brain waves. Don't worry — these tests don't hurt at all. Blood tests may also be done.

All of these tests can help doctors try to find out what caused the seizure and if a kid might have mo
re seizures. But sometimes seizures are a one-time thing — half of the kids who have one seizure never have another one.

Most people who are diagnosed with epilepsy can control their seizures by taking medicines. As they get older, many kids with epilepsy get better and can stop taking medicine. For some kids, it may be difficult to get the seizures under control. A special diet or surgery may be needed.
Are Kids With Epilepsy Different?

People who have epilepsy may need to be careful in places where they could get hurt if they have a seizure, like a high place or in the bathtub. And they may not be able to do certain sports, such as boxing or scuba diving.

But other than that, most people with epilepsy can live normal lives and do what everyone else does. They can go to school, attend college, and get jobs. They can get married and have children.

However, even if epilepsy doesn't limit a person's ability, it can make a kid feel different. So, if you know somebody who has it, you can help a lot just by being a good friend.

Let’s keep Hope alive sharing your story for the world, for others, for those willing to help. Let's take what we experience, what we learn and educate others. 

My new goal is to do what I can to not be just an advocate, but lead by example. To take my dealings and not only heal from them, turn them into lessons and share with them. 

Everyone has their own thought's of epilepsy and whether it's a disorder or a disease, either or, it's there and we need funds for research. We need support for our children, our siblings, our parents, to our grandparents. We need accessibility to resources to the Epilepsy Foundations. We as human beings have a sound soul to reach within themselves and share what we can in any form-we can. To be leaders, to be educators, to be health professionals. 

Not am I only passionate about Advocating for Epilepsy, but I also contribute for breast cancel, Autism, Pancreas Cancer, CHP Association and the Veterans association. I can't do so much alone, but could you imagine if each person contributed just a $1 or $5 how much that can help all these foundations for what is needed. 

From the bottom of my heart ask for you to contribute to my Walk to End Epilepsy for 2012. I was diagnosed last November and am still learning to deal with having this condition, so it my family and friends. It affects everyone around me. So I can only imagine how others deal or handle it. I am very open with my epilepsy and how it's affected my life and I will continue to do so

Last April I put a team together for the Sharon Walk Ride Run 2012 for the Epilepsy Foundation of San Diego. We started with raising a goal of $500 and ended up raising a bit over $3500. It was remarkable and the most rewarding thing I have ever done. So Team Barton is doing another 5k in October at  the Rose Bowl and we are looking for support to reaching our goal of $3,000.00 My precious daughter alone has already raised $300 and is doing everything she can to continue. We are asking for more friends & Family to join our Team and by doing so, you will be allowed a page on the website to set a personal goal under Team Barton. By doing so this will allow us to widen our reach for contributions

If you would like to join our team or contribute, you can go to the following link:

We thank you for your support and encouragement, and always remember as I do everyday, keep hope alive!!!

Note: Some of the information on this blog was from They are a great resource, please check out their Facebook Page

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