Tuesday, January 10, 2012

Epilepsy Found Me....

Hi, my name is Jonny and I am only 33, and recently Epilepsy has joined me in life and it's been difficult since the first seizure happened 2 months ago.

Let me start off by introducing myself a bit more first. My name is Jonathan Barton and I have born in 1978. I am a father of 3 wonderful children, 2 boys and 1 girl. Jacob 2, Tyler 4 and Kaitlynn 12.

I am also happily with their mother Emilee who has been a dream come true in my life. She has supported me through some many up's and down's and now all this happening she's continued to be strong and stand by side.

I am a very lucky guy and father to have Emilee and 3 wonderful children. They are my inspiration and my motivation daily through anything.

We currently live in Riverside California. I am a Sr Service Desk Analyst for a Healthcare company in South Orange County. I work in the IT department and have a number of years experience in Technical Support. I have a passion for it that extends outside of my career into a hobby/side business called "BartonT3Support".

This is my first post since my diagnosis of having Epilepsy. I found out on 01/05/12. Approx 2 months ago I had come home from work not feeling well and ended up passing out and went into a grand mal seizure and was taken away to the hospital. Since then I have had 3 more seizures that I know about including a pretty harsh one last night.

During this time my drivers license has been suspended and I have been placed on a modified work schedule and have been taking the train to work. I was prescribed the drug "Topiramate" 100mg a day. recently my doctor has lowered the dosage to .75 a day as my body doesn't seem to be handling the medication well and I am starting to see the affects at work and home. Today it was decided that I take a Medical leave from work and it was approved by my doctor for 6 weeks. Starting tomorrow I will began 6 weeks of no work stress, continue my dosage, and hope/plan to get rest and relaxation to get better.

I am starting this blog for a few reasons, something for me to do, for me to share, and spread the awareness of this condition as I learn about it since I will be living with it for the rest of my life. Right now I am struggling on how to accept it, deal with it and live with it. It's one day at a time right now, and I know that's ok, but I just need to know that I have to keep moving forward each day.

During the next 6 weeks I also plan to set new goals for my lifestyle, like cutting out caffeine, quit smoking and to lose weight. I will use this blog to track my progress in all areas of my health and progress. I plan to do more research on Epilepsy and become involved in a non profit of some sort.

This marks day one. I am tired, long day at work today. Looking forward to sleeping in tomorrow as day 1 begins.


Anonymous said...

I'm very sorry that this has entered your life, but it sounds like your keeping the important things first in your life. Like keeping positive.

Great first post Jonny! Looking forward to reading your progress.

sandithemouse said...

Oh Jonny I didn't know you had found out what was wrong! I'm so sorry! You are so positive, and so lucky to have Emilee to support you through this. You are in my prayers!

sgillmeister said...

Jonny, you're on a different path than most of us; you are blessed with the attitude, love and support to make it to wherever you want to go...if the medicine you were prescribed had the power of your family and friends, the body would be healed already! Better days ahead...

Unknown said...

Looking forward to future posts; hang in there Johnny! *brofist*